tag:blogger.com,1999:blog-152725724740503583.post1348745171716532933..comments2010-06-19T19:42:48.303-04:00Comments on sibsNY: Welcome to SibsNY!Emily Hollhttp://www.blogger.com/profile/09402866546393766011noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-152725724740503583.post-23299521983044452912009-01-09T23:17:00.000-05:002009-01-09T23:17:00.000-05:00Congratulations on starting this blog! I look forw...Congratulations on starting this blog! I look forward to following the conversations that will develop here. This year I decided to spend the holidays with my sister-in-law and her husband. It is my first celebration of Christmas without my brother Ben, who has Down syndrome, and I am missing him greatly. <BR/><BR/>We decorated a big pine tree with ornaments while listening to holiday-themed music. I was flooded with memories of making ornaments with Ben, decorating our family's tiny plastic tree, and playing the piano while Ben sang Christmas songs at the top of his voice while wearing red and green felt reindeer antlers on his head.<BR/><BR/>Christmas without my brother just isn't the same, but at the same time I realize that I need to establish my own family traditions with my new husband, and spending time with his sister and brother-in-law is part of my new life as an adult.Nina Chttps://www.blogger.com/profile/16243071932367082630noreply@blogger.comtag:blogger.com,1999:blog-152725724740503583.post-32486786378624627492008-12-29T11:07:00.000-05:002008-12-29T11:07:00.000-05:00Hi Emily! I just joined so I can officially "foll...Hi Emily! I just joined so I can officially "follow" your blog! I am new to all of this, so I feel even further behind! I know there is a way to connect your blog to your facebook profile, if you are interested. I don't know how it works, but I know Maria does it. Anyhow, great start! Thanks for sharing it! :-)Sharon McGovernhttps://www.blogger.com/profile/06091457336757189216noreply@blogger.comtag:blogger.com,1999:blog-152725724740503583.post-64651857377008661132008-12-26T10:40:00.000-05:002008-12-26T10:40:00.000-05:00Hi EmilyI have done a little blogging on www.daily...Hi Emily<BR/><BR/>I have done a little blogging on www.dailykos.com which is a political website that gets alot of traffic. I hope to raise awareness of issues that effect people with disaiblities and their families. We need to change our screwed up system. <BR/><BR/>Congrats on the blog and joining the 21st century. Love NoraNora Handlerhttps://www.blogger.com/profile/12377472481395975053noreply@blogger.comtag:blogger.com,1999:blog-152725724740503583.post-74388763593359143932008-12-24T12:53:00.001-05:002008-12-24T12:53:00.001-05:00This comment has been removed by the author.Rookiehttps://www.blogger.com/profile/17407398722811277370noreply@blogger.comtag:blogger.com,1999:blog-152725724740503583.post-4984956050879851062008-12-24T12:53:00.000-05:002008-12-24T12:53:00.000-05:00I could not agree with Emily more. We are focused ...I could not agree with Emily more. We are focused on family this time of year. My sister Buffy comes home twice each year and one of those times is Christmas. I, like Emily, have always known Buffy needed a little extra help but as a child was unable to tell you why. Today I am determined to help Buffy in any way I can to be as independent as possible. I want her to lead a healthy and happy live despite her challenges. My sister has been diagnosed as profoundly intellectually disabled. She can not take care of herself and is non-verbal. However Buffy most certainly finds other ways to communicate with her family. Growing up with Buffy was not easy but our parents worked very hard to ensure that all three of us received equal time and attention. We fought just like any other siblings despite this today Buffy, peter, and I share a very close relationship. Buffy is four years older that Me and My brother Peter is five years younger. This is a rare time of year when we can all be together. Having Buffy at home is never easy but we share much joy and laughter during this time. It is a unique bond we share and as Emily mentioned one that should be celebrated. I look forward to this time and the chance it gives us to create more happy memories we can cherish for years to comecaroline Lunahttps://www.blogger.com/profile/05937012017431650947noreply@blogger.com